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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Treatment Available For Cll I'm Watching And Waiting For Now My Blood Count Is Still Decent

A MyLeukemiaTeam Member asked a question 💭
Pasadena, TX
August 5, 2019
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A MyLeukemiaTeam Member

I want to tell everyone about a possible therapy for chronic lymphocyte leukemia. My oncologist knew I was not interested in chemotherapy so he gave me a paper telling about Neem leaf extract inducing cell death by apoptosis in chronic lymphocytic leukemia cells. I ordered some from iherb.com and have been taking it since December 24th. The oncologist did not give me any instructions as to the dosage so I have been taking half of the eye dropper full every day 3 times a day. It is bitter so I mix it with about half of a small cup of water. I don't see him again until April but meanwhile I have noticed the lymph nodes on my neck that I can feel are starting to decrease. Your doctor probably won't approve this because of course they get a portion of the chemotherapy cost. My white blood cell count was around 22,000 and so those in the earlier stages of Leukemia might be interested in this. Cost was $9 per month!

January 25, 2020
A MyLeukemiaTeam Member

RandyBennett, yes I had imbruvica for 5yrs it was good while it lasted.

August 26, 2019
A MyLeukemiaTeam Member

Venteaclax cost depends on your insurance. If you have insurance and Medicare. Then there are lots of places that will help you out with paying for the drugs. Including a drug companies. Talk to your doctor he/she can help you decide.

January 10, 2020
A MyLeukemiaTeam Member

I started imbruvica about six weeks ago what I’ve read about it has been promising.

August 25, 2019
A MyLeukemiaTeam Member

Thank you RollandCLL as you said W&W I was diagnosed 2016 I'm pretty healthy except for cll. I'm just putting it in God hands. I'll do what's in my reach leave the rest to God

August 6, 2019

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