See another doctor if you think it is important to have it checked. Many of our oncologists/hematology are are overloaded. They care but are just way to busy.😏

Hi all, I had previously posted on this pre-transplant for AMML; however, I am 10 months post transplant now and found out yesterday that I have severe osteoporosis at 44 y/o caused by the chemotherapy, radiation, and SCT. If you continue to have bone pain, especially post remission bone pain, ask your doctors for a bone density scan. I will be starting the same treatment next week that my 89 y/o grandmother takes for osteoporosis. Be vigilant about your health and do not accept “NO” for answer. Thank the Lord above for me having a vigilant PCP, an adoring oncology group, and the most amazing SCT team a woman could ask for.

Most days I do. Are you taking Claritin?
My oncology team uses that to help with inflammation and bone

I do joint pain but I am not sure if it is from CLL or what. I do have osteoarthritis and calcific bursitis. Recently had a TKR total knee replacement on the right knee and need the left knee done too! My understanding is it is the osteoarthritis. All I know is I have lots of joint pain but I have been able to manage it. Since I am in stage 0 with CLL, it might be a combination of both issues. I honestly try not to think about it, I just deal with it as it happens and exercise even in pain, it helps to limber up the joints! I hope 🙏 you are also able to manage to bone pain too!

Unfortunately, treatment can also cause devastating side affects & other issues… The Doctors must know everything u experience during treatment & after… Unfortunately, u need to keep on top of everything as well… Really, tough when we are spacey, foggy… The bone pain you are explaining is definitely located in Info on Leukemia!!! Both, bone & joint pain are part of this deal… Please don’t delay in getting any lumps checked… Stay vigilant & Speak up…
PS Completely agree w/Michael D… If u can take a loved one or friend w/a list of question or taking notes… Excellent advice! Unfortunately, I also understand those of us that don’t have the extra support… My best wishes to you💜