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I Don't Understand What The Numbers Mean

A MyLeukemiaTeam Member asked a question 💭
Boston, MA

Hello all and thank you for allowing me to join this group! I was diagnosed with CLL one year ago after my PCP noticed that my while cell count was a little high after being treated for a bad infection in my finger. She watched my bw for 3 months before sending me to a Hematologist, who gave me the diagnosis. This doctor told me that I don't need any treatment and I see her every 3 months for bw and a physical exam, checking my lymph nodes. My white cell count has gone from 11 up to 27 in a… read more

August 14, 2020
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A MyLeukemiaTeam Member

I think the WBC of 11 is really 11K or 11,000 and the same with your count of 27. 27 is probably 27K or 27,000. Ask you hemotologist to explain these numbers. All of the charts I see list these in the thousands. Or maybe call the Lab and ask them if they should be 11,000 not 11 and 27,000 not 27. 🤔

April 11, 2023
A MyLeukemiaTeam Member

11 means 11000 i do believe

September 29, 2020 (edited)
A MyLeukemiaTeam Member

From what I've read, it's when WBC goes over 100 K that they even start to consider very many treatments, plus your age has a lot to do with the type of treatments they will consider giving you. Thus, since mine are well below 100K and my age is up there, I've been doing holistic things with diet and exercise. My lymphocytes and WBC have dropped a lot. I figure what have I got to lose! Worrying certainly didn't help me!

June 5, 2023
A MyLeukemiaTeam Member

All of the tests I ever had showed counts in thousands. For instance 2.9 is two thousand nine hundred. Your numbers are high. I urge you to get a second opinion ASAP.

April 12, 2023
A MyLeukemiaTeam Member

It's not the numbers alone that matter. It's the other things too. Do you have swollen lymph nodes, enlarged spleen, severe night sweats or chills. Things like that they look for. My sister who also has CLL has wbc that have gone to 400k! No other symptoms...well not in oncology ways.. but they decided to do chemo at that point. Mine were only at like 28k for a while but then I had these "episodes" of seizure looking sever chills at night. They'd come on suddenly and violently. I'd flop around like a fish out of water for like up to an hour! my body hurt. SO i started treatment after i finally told my dr.Hold off as long as you can, is my advice. be well!

March 27, 2023

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