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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is Anyone Taking Onureg?

A MyLeukemiaTeam Member asked a question 💭
Ponchatoula, LA

Hello,
I am currently in remission with AML. I am taking the pill form of Onureg. I’ve been on it for 3 months with no side effects. Is anyone else taking this medication? I take a Zophram 30 minutes prior to the Onureg.

January 24, 2021
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A MyLeukemiaTeam Member

This is the first post I have seen that Simone has CMML-1. I was diagnosed with CMML-2 almost 2 yrs ago. My WBC was at 70,000. They immediately sent me to the UW in Seattle and started chemo within a couple days. I went thru 3 rounds of chemo over 5 months. The first round side effects were normal. Weight loss a pound a day, mouth sores, nausea that Zoltan helped a lot with. When I got out I was prescribed Onureg but had nausea and the other side effects mentioned. After about a month it was causing my WBC to increase. My Doc took me off it. I continued with the anti viral, anti bacterial and another one I don’t remember. After about 6 months of encouraging numbers stabilizing and being in remission, I stopped taking everything. I feel great except my knee is keeping me pretty immobile. (Not cancer related) my blood tests have changed to every 3 months and my Doc doesn’t need to see me for 6 months. I do experience fatigue a lot and the only thing that keeps me awake is my knee. I really didn’t think I would still be here. God has been with me every step of the way and I know he has me on his path. I told my son the other day that I never once questioned “Why”. I just trust God.
I am almost 73. I lost everything but I had been saying for years that I needed to downsize. 😁❤️🙏

April 9, 2023
A MyLeukemiaTeam Member

I am on Oneureg and it has been a horrible experience for me. Nausea, vomiting, diarrhea, neutropenia. This is supposed to be hold over chemo until stem cell transplant.

July 2, 2022
A MyLeukemiaTeam Member

Zophran is great. Also, Compozine is good.

January 27, 2021
A MyLeukemiaTeam Member

Zofran works best.

January 27, 2021
A MyLeukemiaTeam Member

No sorry! any advice on what works best for nausea? I have CLL.

January 25, 2021

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