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Does Everyone Spend At Least A Month In The Hospital For Bone Marrow Transplant?

A MyLeukemiaTeam Member asked a question 💭
Ashland, OH
September 16, 2023
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A MyLeukemiaTeam Member

It depends chemo to destroy your own which could cause infection. Then the transplant; you have to stay ensuring your body isn't rejecting the donor or the anti rejection drugs. I've never been there only know of two whom had transplant.

September 16, 2023
A MyLeukemiaTeam Member

Hi Den. I believe when I did my BMT, it was a bit more than 4 weeks. The transplant itself was "uneventful" and I thought would be different than it was, but the preparation and post transplant was not anything I had really any forewarning on to the day to day. As with my whole experience, I did not endure too much pain at any time of that 2020-21 time period. All my doctors and nurses took incredible care in managing pain and nausea. The pre-transplant was, to be brutally honest, the period what I remember the most because of the activities. Ensuring we would prevent mouth sores during the lead up with the awful taste of what was being pumped in to kill off the whites --- chewing on ice non stop during that treatment is something I still think about. The transplant was pretty simple, and then the post-transplant was stressful because of infection control, hoping to get some favorable counts every day, etc. I went hope after my counts got to where they needed to be right after the 4 week time period. I didn't have to stay in a close by hospital or such; I was about 30 minutes away in my home. While all of it was such a process, I had such faith in my medical team that I just did what they said and never had any fear of it going the wrong direction. For your case, not sure what your options are --- they say the transplant is better when you are healthier and younger versus waiting until later. While I have GVHD and a very hefty Rx bill with Jakafi, the decision for the transplant was made for all the right reasons. I couldn't get into full remission without the transplant. Now with a new blood system (and having to do all your childhood vaccinations again!), I am in remission and so far, I have no regrets at all with the transplant. Not sure this helps your question, but know everyone's situation has different twists and you have to rely on your medical team to guide you for the best recovery. Good luck in your decision-making.

September 16, 2023
A MyLeukemiaTeam Member

I had everything ready to go in the hospital to have the bone marrow transplant but thankfully as of now I am in remission the new medication did start to work but I was told I would have to stay in the hospital for a month and then where I live a hour away from the dr and hospital I was going to have to move to a hope lodge to stay for 2-3 months so I could be close to the hospital if I needed to get there or dr fast because they said if I stayed at home if something happened I could not make it back in time to be seen because I had to go to that hospital because they was the ones treating me plus I had to have a family member or a friend to be my caregiver tell I could come home

September 30, 2023
A MyLeukemiaTeam Member

You have to have some kind of fun wherever you can get it!

September 18, 2023
A MyLeukemiaTeam Member

I, as Ron, do remember the pretransplant chemo and during one of the infusions having to chew on ice to prevent mouth sores, but it was only for a few hours. My staff was the best and did everything they could to ensure my comfort. They made sure I had blankets to keep me warm during the ice chewing and sometimes alternated the ice with Italian ices in whatever flavor I wanted. The transplant was presented to me as my only hope for a cure. I was 72 and in good health. I went to the gym daily for treadmill. Pilates, and yoga. I feel great today, 4 years later, and still exercise daily. I know I made the right decision, but everyone is different. I had to stay in a hospital apartment because the hospital was in NYC. I live on Long Island, and although, only 45 minutes away, with traffic it could take up to 2 hours to reach the hospital had I had an emergency. Leukemia/lymphoma Society, Be the Match, as well as other organizations do provide financial assistance if that is needed. Call them directly and check with your hospital social worker. I wish you the best.

September 17, 2023

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