I Thought Of Having Another Test. Bone Marrow Or Whatever. I Have Only Had The Blood Test, It Said Stage 0 And CLL. Is It Too Early Or Best
to be more thorough and get more testing. Love to get some advice.
Dear Leah, it's great that your pneumonia and RSV infect are dissapeared and you healthy from that.
We both have a similar hematologic situation. I could watch the development since 2018, when it was in a pre-CLL-stage.
So I had a lot of time to study the CLL in detail.
Brenda made very good points, the oncologists will tell what the best will be to do.
What I can share with you:
Usually the CLL diagnosis from blood is reliably, so usually a bone marrow should not give additional important information.
This is different for many other hematological entities, where bone marrow diagnostics is essential.
Stage 0 may mean Rai stage 0 (?). If this is the case, this may mean that you have not swollen lymphe nodes, no swollen liver or greater spleen and no low counts in red blood cells or thrombocytes, which are important for hemostasis.
Mostly many or many many years may pass till a specific CLL treatment may be necessary, in some cases there are even people who never need a treatment. Most probably your oncologist will look for your wellbeing rather than for the cell counts of your white blood cells. The oncologist may have told to you that the CLL cells are a fraction of the white cells, the B-lymphocytes.
There are good treatment options for CLL today. In earlier treatments the genetic markers made a difference, this is better in new treatments, which two of our friends talked about.
So I hope I could help a little bit. But there will be good options for you, if necessary, please remain confident, that will help !
All the Best
- Alexander -
Good for you. You are pre-cancerous. For now you only need periodic blood testes.
Having been through diagnosis, wait an see, infusion treatments and oral treatments, and remission without having a bone marrow test... I'd say, unless the doctor suspects something seems suspicious. My Hematologist gives me the printout from my blood labs, my blood labs track things I've never heard of.
My oncologist didn't order a bone marrow test for a year and a half. Then it was to see if I was in remission. I went with what the doctor thought was best. They can tell a lot from the blood work. I wouldn't worry about the bone marrow test just yet, based on my own experience 😊 Good luck.
Leah3, I think the advice you have been given from our group is sound advice. You oncologist knows best how to guide you. I'm a retired nurse and diagnosed 5/2022 and it appers you are in the pre cancerous stage. You and your oncologist will know when or if you have to proceed and if your numbers change or symptoms to consider. Let us know how this visit goes.
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Hello, I Would Like To Know If All People Diagnosed With CLL Are Diagnosed Based On The Results Of A Bone Marrow Biopsy Or If In Some Cases
Who Here Has Cll? What Stage? How Long?