I ws told I have stage 4 cll but that doesn't mean I'm at deaths door, just that it is in all my lymph nodes, which are currently small since treatment began in December.
Just keep on rocking.😃

All of us with CLL die of it unless we die of something else earlier. There are no cures currently. So it is a matter of how fast you go downhill. Being high risk suggests faster than average but it is still a crap shoot. When you start getting sick a lot and medication doesn't seem to do any good then you may be into the end game, but while you live, you live, and loving and creating are still possible.

I discovered last year that many doctors may just be collecting a pay check and do not care about treating us with medication to cure us? Last December my doctor checked out (I have no idea where he is currently?) I think he left me because I had too many questions he could not or would not answer? I no see a Nurse Practitioner who answered all my questions and provided a prescription for medication Brushinsa which gave me 10000 WBC count. Nobody has to sit and wait for a cure. I have reviewed the different medications for many different Leukemias and I think we can ask for a prescription. Well, I asked and was provided a prescription and assistance with paying for the $500 (2 pills) daily cost. Please do not wait or be delayed by a doctor who wants to experiment with your life. We make our decisions for our wellbeing. I am glad after 2 years of being infected I wanted medication to be healthier. I hope you and others get the assistance you deserve to be people who demonstrate that we can be helped with having a better life.

Thanks for letting me know Betty:) May the rest of your day be wonderful! :):)