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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Have 13q Deletion

A MyLeukemiaTeam Member asked a question 💭
Royal Palm Beach, FL
June 14, 2024
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A MyLeukemiaTeam Member

Best attitude to have going forward. You have to deal wirh what happens when it happens and not let the illness rule your life because you still have so much life to live! All the best to you!

June 15, 2024
A MyLeukemiaTeam Member

Rich4 ..Coffee raises your platelets...all whole foods.. Peanut butter..nuts ..beans .. grams veggies and Greens ..stay away from Garlic..Ginger.. Termeric..I was doing a lot of this and I was drinking green tea till I found out that it does nothing for my platelets.... walking and drinking water really helps build your placttlets up also...eat healthy foods and walk and drink coffee and water..Get some sun also..it builds placttlets up ......I take papaya also...it is good for raising placttlets..I made changes Deleted all the foods that lowered them added in what raised them went for my blood work in July before my surgery and they went back up to 179 normal..I was amazed..and happy

October 22, 2024 (edited)
A MyLeukemiaTeam Member

Great question, Judy, I'd love to see other peoples' remarks. My WBC reached 93.3 mg and the doctor was going to start treatment if they went up to 100 mg.
High WBC can smudge the RBC & Platelets, causing other health issues. Likely, my WBC dropped down, so I didn't need treatment. My CBC numbers have been stable, which is a factor in not starting treatment ye too.. CLL is a slow growing cancer and a lot of factors are considered before starting treatment: enlarged spleen & lymph nodes, fever, night sweats, fatigue, weight loss, patient's RBC and platelet counts are decreasing. I have had it 20 years without symptoms, however, the past three months have been experiencing fatigue. 🙏.

October 19, 2024
A MyLeukemiaTeam Member

Can I ask how starting treatment was determined by doctor? My white count was 106 last month and we talked about starting the pills in November. All my lymph nodes are enlarged. My other counts are still normal: red count, platelets.

October 19, 2024
A MyLeukemiaTeam Member

Wow you are a cat with nine lives.you know how to battle it out….that’s great your in remission.I been thinking lately now is the time to celebrate I don’t need treatments.starting treatments sounds scarier.I’m a fighter too I want to win my battles.

June 15, 2024

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Gen-deletion Tested?

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The Hague, NL

I Have Asked This ? Before And Gotten No Responses. I'll Try Again. Was Diagnosed With CLL Chromosome Mutation TP53 Mid November 22

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Oak Ridge, TN

Hi Everyone. Hope You’re Having A Good Day. I’m Trying To Find Anyone Who Has Had Cytogenetic Testing Showing X Chromosome Deletion. Thanks.

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Sharon, MA
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