Connect with others who understand.

Sign up Log in
Resources
About MyLeukemiaTeam
Powered By
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Do You Do For People With CLL And GCA, Giant Cell Arteritis?

A MyLeukemiaTeam Member asked a question πŸ’­
Albuquerque, NM
June 16, 2024
β€’
View reactions
Is CAR T-Cell Therapy Possibly a β€˜Cure’ for Leukemia? Read Article...
A MyLeukemiaTeam Member

I have mixed feelings about CAR T-Cell therapy. I think a lot of it has to do with how well you have a good support team. My Sister was Dx'd with MM a few years ago and underwent a T-Cell transplant in February this year. Initially her response was good, her numbers improved greatly. She started having problems with vision in one eye and speaking in March. Her Oncologist wasn't much help, referred her to a ENT specialist and suggested she also see an eye doctor which she did but it took time to schedule. She continued to decline ever while her numbers stayed good. She passed in May. Just too much strain on her system. In talking with my oncologist, who is retired and have lunch with once a month, he surmised that she probably had a brain bleed that was missed. Was it related to her T-Cell treatment I don't know. I do think that her health care by her "team" could have been better. As they say "your results may vary". Be Strong and Persevere.

June 24, 2024

Related content

View All

What Are The Treatments For CLL And GCA, Giant Cell Arteritis, Which Don't Hinder The Other Condition? Help!

A MyLeukemiaTeam Member asked a question πŸ’­
Albuquerque, NM

Does Anyone Else Have GCA? Great Cell Ateritis Along With Their CLL Or Other Cancer?

A MyLeukemiaTeam Member asked a question πŸ’­
Albuquerque, NM

Is There A Correlation Between CLL And GCA (Great Cell Arteritis)

A MyLeukemiaTeam Member asked a question πŸ’­
Albuquerque, NM
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in