Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
Powered By
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Have CLL, Frankly, I’m Getting Very Tired Of Complaining About FATIGUE But

A MyLeukemiaTeam Member asked a question 💭
Toledo, OH

It comes on somewhat fast and leaves me needing to lay down. So here comes my request. I’d appreciate if others would tell me about the fatigue you are experiencing. I fell like I’m the only one ( although I know I am not ). It’s difficult. I’m planning a trip down to Florida to see my my son, his wife and my granddaughter but frankly, I don’t know how I’m gonna do it

October 16, 2024
View reactions
A MyLeukemiaTeam Member

Hopefully we can all find peace in knowing we don't NEED to get everything done in one day. If we're tired, accept it, embrace it, relax and try it again tomorrow. Enjoy the blessed time we do have. We are luckier than some.

April 1
A MyLeukemiaTeam Member

Listen to your body rest when possible, a good healthy diet is important also small portions of food regularly puts less stress on body and is better to conserve energy wherever possible
All the best.. eat greens . Chamomile tea and coriander ✌️

August 7
A MyLeukemiaTeam Member

John, you are definitely not alone. Fatigue has been my major complaint since diagnosis. As the years go by, it seems like the fatigue gets worse. Even though my numbers are good, I still have the fatigue.
Our bodies are in a constant battle to fight and destroy cancer cells. Most of the time, our B and T cells only go into fight mode if we have an infection, but with leukemia, they are fighting all the time and of course that affects how we feel.
It's very frustrating to a person that has been active for all of their life but it's what we have to deal with.
We have to pace our activities, take a rest when needed and get lots of sleep including naps. Our body will heal when we sleep and allow everything to slow down for a while.
It's the pits but it's what we're dealt with. I hope you are doing well otherwise. 😊

October 16, 2024
A MyLeukemiaTeam Member

Hey John yes it's it's a continual thing the hire your wbcs the worst of fatigue I dealt with it for almost four and a half years sometimes I would have to sleep all day long with no energy so you're not alone but I will tell you that it wasn't until I started getting treatment and I'm probably sounding like a broken record Brukinsa killed cancer cells lowering my infected wbcs it wasn't until my wbc's got down to 18 to 9000 that I started getting energy back not having to sleep all day at least for me I tried diet I tried vitamin B12 I tried vitamin d none of it worked I hope this helps God bless you have a great day

October 16, 2024
A MyLeukemiaTeam Member

We all have many days of feeling too tired to do anything. Our bodies are fighting the best it can but it needs extra rest.

April 4

Related content

View All

What Is Up With Wait & Watch? It Seems To Me That CLL Is The Only Diagnosis For Which Early Detection Is Irrelevant. Why Wait To Treat?

A MyLeukemiaTeam Member asked a question 💭
Entiat, WA

Has Anyone Experienced Extreme Fatigue Before Getting Treatment For CLL?

A MyLeukemiaTeam Member asked a question 💭
Decatur, GA

My Oncologist Stated That I’m Very Close To Stage One, Or Right At The Cusp Between A Watch And Wait And Stage One. My Question Is Fatigue.

A MyLeukemiaTeam Member asked a question 💭
Toledo, OH

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a Member? Log in