I’m Newly Diagnosed. When You Were Diagnosed Did The Provider Give You A Treatment Plan?
My chiropractor suggested seeing a naturopath. May do that once the levels are high enough to go out again.
We were not. We were told wait and see at Riverside Medical Clinic so we got a second opinion at UCI. The dr at UCI is a CLL specialist and I highly recommend trying to see a specialist. We came armed with questions and she answered every one of them, although the wait and see was still the treatment plan. Have a 6-month test tomorrow so we will “see” 😆. We saw a naturopath locally who did some tests and put him on a diet for his particular food sensitivities. If you want to chat about it, we are geographically close and I can give you some local references.
My medical team were quiet and did not provide any answers excess "don't worry and see you in two months?" I got my answers reading posting and resource section. I did not get any answers during my "wait and see" which did not make any sense to me? I requested medication 12/24 before any damage to my organs or glands. Medication did not cause any ill affects thought plenty of stage ill affects were listed? I think people in the best group may have been so unhealthy that they reported their "ill affects?" Medication can be expensive since my medication costs $15500 per month (there are organizations which provide grants so medication cost may be $0.) I did have a grant from Leukemia Society which had paid the co-payment $3400. Currently, my cost is $0 since insurance now pays 100%. I hope you can eat healthy and exercise to maintain your health. Finding answers can be good for both mental and physical health. When I read postings I feel good that others are accomplishing good things in their life and their posting can help others.
When newly diagnosed with leukemia, it's common for healthcare providers to give you a treatment plan. This plan often includes:
- Treatment plans
- Medical bills
- Lab results
- Insurance paperwork (home, health, life, or others)
- Power of attorney
- A living will or advance directive
- A will
- Other financial paperwork
We paid for a second opinion at city of hope and will change insurance in January so I can be followed there. The MD gave my diagnosis over the phone, telling me that I’m not a candidate for BMT, putting me on neupogen which isn’t helping the neutropenia much at all and is not seeing me for three months. Never done this before but made a complaint to member services.
Do You Have Any Experience With T-cell Large Granular Lymphocytic Leukemia Treatment? I Started On Methotrexate 10 Days Ago.
Who Here Has Cll? What Stage? How Long?
Curious…for All Members Here Diagnosed With CLL….what Are Your WBC And Lymph Numbers? Mine Are 44,000 Wbc And 38,000 Absolute Lymphs.