I take medication which "controls" the WBC count which was 75K but today is 8K. I understand the BTK Inhibitor effect and how the chemical attacks to WBC to inactive the cell. The medication does not attack organs or healthy cells. I understand that the medication may become ineffective in the future as cells change or mutate. There are new medications which may replace the current BTK Inhibitors with chemicals which combat WBC by other methods. These new methods may cost a quarter million or more for a signal does. The magazine CURE issue 9/24 lists interesting medications in development for combating excess WBC.

I think doctor and medical people should change from "remission" (getting better but possible ill in the future?) to "control" (reduced infection but possible ill infection in the future.) The possibility of being ill in the future is not stressed with treatments or medication? So far the "cure" is NOT used which is very helpful and prevents confusion. My medication information utilizes the "control" versus the word "remission."

I had 3 months of radiation therapy after having a Liposarcoma removed. My WBC dropped back to normal. But unfortunately just as my doctor stated, my WBC is coming back. According to my oncologist, for CLL patients there is about an 80% chance the WBC will rise. However, I'm still at stage 0, praise God!

I'm just so weak and tired all the time