I have CLL with medication with no ill affects. I think your medical people should “share & care” versus do nothing. The pain should be taken care of to reduce stress. Medical people who do nothing are not doing their job. I think stress can activate bad health problems so pain should be treated versus saying this is not a medical problem?

Hi WebbyTr, There are a few of us on this site with T-PLL since it’s such a rare leukemia and not researched as well as other leukemias. Yes, doctors will wait until our illness becomes active before providing treatment because they have found that early treatment does not help this rare leukemia. To find others with T-PLL, on this site, you can search through the tab “Meet Others” and enter the disease T-PLL and see who is active on the site. I have T-PLL, diagnosed in October of 2003. I am considered inactive at this time. Sending you peace and hope. I will also see if Sharon603 (active on site) can welcome you to the T-PLL Warrior Team.

Sorry, I was diagnosed in 2023, just recently.

Thank you very much BIGEYES. Every info is so important for new patients, I greatly appreciate it. For us the news of 'waiting' was such a shock. We have been thought that 'early diagnosis and immediate treatment is crucial in cancer' but there are so mant different cancer cases. I will check the 'Meet others' tab. So you were diagnosed in 2003, 21 years ago? Did you have a stem cell tranplant? I am also sending you best wishes and prayers.