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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

CML

A MyLeukemiaTeam Member asked a question 💭
Worcester, MA

How do people physically feel with Leukemia?

January 10, 2020
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A MyLeukemiaTeam Member

My main problem physically is I feel exhausted 24/7, I can't tell if the pain I have in my joints is from the leukemia or from the arthritis or fibromyalgia, but I have pain 24/7some days better than others. I am wondering if anyone has had problems staying awake when they are driving, I have noticed a big significance in having problems staying awake when I have to travel more than 20 minutes from my home which happens to be for most of the things that I need to do is at least 30 minutes from my home, I literally have to buy something to munch on so that I stay awake, this is becoming problematic and has nearly caused me to have an accident.

February 29, 2020
A MyLeukemiaTeam Member

Don,t forget constipation or explosive diarrhea, Oh and on chemo nothing has a taste .Only if you like cardboard. Oh super dry skin. And almost forgot those crazy nightsweats

February 6, 2020
A MyLeukemiaTeam Member

I am also very fatigued. My eyes are very swollen most of the time. Muscle and joint pain. Bouts of nausea.

February 1, 2020
A MyLeukemiaTeam Member

Sounds like you are still doing good. I take extra strength aspirin w/ caffeine to help me stay awake and I take 1 5mg 3x a day oxycoden for pain during the day. I can’t take it during the night because it keeps me awake. Hang in there and boost up the caffeine.

April 20, 2020
A MyLeukemiaTeam Member

I feel very fatiqued. I have alot of muscle and joint pain. I have night sweats terrible. I tire very easily and quickly.

January 26, 2020

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