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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Relapsed With HCL More Than Once And What Time Frame?

A MyLeukemiaTeam Member asked a question πŸ’­
Macomb, MI

Chemo in 2011 then again 2020 and I'm trying to plan the future.

March 13, 2023
β€’
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A MyLeukemiaTeam Member

I have had AML for over 55 years. Diagnosed in 1968 at Rosewell Park in Buffalo since back than there was only 3 hospitals that treateed it. I live in Bucks County PA.
Spent 5 straight years on Chemo because they didnt know when it was safr to stop.

SO KEEP ON PLANNING FOR THE FUTURE EVERY DAY

March 18, 2023
A MyLeukemiaTeam Member

Yes indeed you do. I forgot about 8 weeks of radiation between Cladribine and Vemurafenib. Best wishes for everyone. Charles Breiten

March 19, 2023
A MyLeukemiaTeam Member

Thank you for the information. I guess I have a long way to go!πŸ™‚

March 19, 2023
A MyLeukemiaTeam Member

Charles Breiten

March 18, 2023
A MyLeukemiaTeam Member

32 years with HCL on 3/23/23. Many relapses, more than I like to remember, Spleenectomy/ Interferon, 3 years PR, Pentostatin x2, 8 and 5 year CR, Pentostatin x 1 PR then Clabribine x1 CR, 1 year or less. Rituximab x8, 1 year or less CR, Clabriine x1 CR, 1 year or less, Vemurafenib low dose continually x five years, CR. Bendamustine x1 Rituximab x2, resistance did not continue clinical trial. Mekinist and Taflinar 2 years 9 months still responding CR. Several other treatments are available or in clinical trials. Do plan on living a wonderful life, even with the setbacks. I have and Will everyday.

March 18, 2023

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