Have Been On Imbruvica For Over Ten Years, But Now My White Counts Are Slowly Going Up Meaning My Imbruvica Is Not Working As Well.
Tests that were done at NIH confirmed this. Perhaps in a few months, I will have to decide on a clinical trial for either CAR-t or Venetoclax. Both can have serious side effects. Want to explore all my options. Anyone on these
Treatments?
I wish I had information, but to this date I have not had to really look at different options. I feel sure you will get the information you need to determine best next steps. Take care
It worked for almost 11 years…now my white counts are very slowly going up.
Thanks for responding . I have not started Imbruvica as of yet. Still waiting to hear the price and my options in that regard.
Thanks for responding.
So I Have CLL My Doctor Says We Should Watch And Wait My WBC Is At 19 At What Point Should I Be Having Some Kind Of Treatment
I Don't Understand What The Numbers Mean
I Am Newly Diagnosed With MDS Del(-5q). I Am Looking For Information About Other Peoples Experiences.