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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

After Finding Out About Your Diagnosis, Did You Feel Weird Telling People?

A MyLeukemiaTeam Member asked a question 💭
Eatontown, NJ

I have only told a few people and I'm worried about that because I don't want people to look at me like I'm weak

August 27, 2024
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A MyLeukemiaTeam Member

At diagnosis, I only told my closest family and friends. I did this because I felt that if everyone knew, I would be thought of as " the guy with cancer.". After 6 years of W&W, I began treatment and I "came out" to everyone because I had to explain periodic absences. The reaction 100% was we are just glad that it is treatable and the prognosis is good. So my feelings were just that, feelings in my head only.

If I had a do-,lover, I would be more open about it from the start. The only caution would be whether to tell my employer; although I was fortunate and my bosses at the time were terrific about it.

September 5, 2024
A MyLeukemiaTeam Member

Your friends are the people walking in the door when everyone else is walking out.

August 31, 2024
A MyLeukemiaTeam Member

See that's one thing im worried about is people who are in my life just going away, But your right it is my call. Thank you

August 28, 2024
A MyLeukemiaTeam Member

It is your call. Some people fear sharing could drive people away. My feeling is in that case, it is a good way to remove toxic people from your life! Personally I share when the time feels right or I trust the person. One thing for sure - it should be YOUR call. My spouse used my condition to draw empathy from people, as if he was victim. That was NO bueno.

August 27, 2024
A MyLeukemiaTeam Member

The doctor was not helpful with information.I remember the doctor told me, "don't worry?" The doctor told me this for a year even though my count increased each visit? Good information helps to understand the future and my next step with my health. This team environment is very helpful and provides answers to many questions.

August 27, 2024

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