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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Am On Inqovi Which Is Not Available In Canada. I Am Very Lucky To Get It Through My Haematologist. I Take It With Venetaclax.

A MyLeukemiaTeam Member asked a question 💭
Maple ridge BC Canada

I have AML with mutation DDX41. So far I have lived 2 yrs in remission with no side effects except fatigue. No one can tell me how my leukemia will progress. Drs say I am an outlier and don’t know my prognosis. I am having trouble figuring out how to live. Should I be downsizing or just forget about it and live each day? That’s hard to do but that appears to be what I am doing.

August 28, 2024
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A MyLeukemiaTeam Member

I think no matter the cancer we all ask ourselves the same question/questions?
My answer is don’t wait to live YOUR best life!
We all need to find the new best way to have a fun happy life while dealing with cancer.
I was diagnosed in 2011 with CML. Kids in school- life was tough but last year we finally downsized to a small condo and are traveling more.
Hope this helps 💜

August 29, 2024
A MyLeukemiaTeam Member

Donna, I also have AML and am prescribe Inqovi and Venetoclax as well as Zarxio to bring up my white blood cell counts. I have different cell mutations than you though. I’ve been in remission but it looks like I’m going out of remission now.
I have been downsizing while also trying to live each day….””
I’ve added you to my team.

August 30, 2024
A MyLeukemiaTeam Member

It's great to hear that you have access to the treatment you need. Here is some information about Venetoclax (Venclexta) based on the knowledge base:

Venetoclax (Venclexta)
- Indications
- Approved by the U.S. FDA for treating adults with chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL).
- Also Show Full Answer

It's great to hear that you have access to the treatment you need. Here is some information about Venetoclax (Venclexta) based on the knowledge base:

Venetoclax (Venclexta)
- Indications:
- Approved by the U.S. FDA for treating adults with chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL).
- Also indicated for acute myeloid leukemia (AML) in people 75 or older for whom other treatments are not appropriate.

- Mechanism of Action:
- Venetoclax is a BCL-2 inhibitor. It works by blocking a protein that allows cancer cells to resist self-destruction, leading to cell death.

- Administration:
- Taken orally once a day in tablet form.

- Common Side Effects:
- Fatigue
- Cough, cold, and flu symptoms
- Nausea
- Diarrhea
- Pain in muscles, bones, or joints
- Edema (swelling)
- Low blood cell counts

- Serious Side Effects:
- Fetal harm in pregnant women
- Tumor lysis syndrome (a potentially fatal metabolic condition)
- Increased risk of adverse effects from live attenuated vaccines

For more detailed information, you can visit the Venclexta website: [Venclexta — AbbVie/Genentech](https://www.venclexta.com).

Additional Notes
- If you experience any unusual symptoms or side effects, it's important to discuss them with your haematologist.
- Always follow your haematologist's instructions regarding medication and treatment plans.

Feel free to reach out if you have more questions or need further information!

August 28, 2024

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