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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Large Swollen Lymph Nodes In Arm Pits

A MyLeukemiaTeam Member asked a question 💭
Montpelier, VT

I have CLL diagnosed in March 2023. Still on watch and wait.
Large lymph nodes are starting to bother me. I have energy and an appetite. Anyone have this? If so, how do you manage?

September 29, 2024
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A MyLeukemiaTeam Member

Thank you, Jim. I see my oncologist every 2 months to monitor bloodwork, etc.
Best to you

October 4, 2024
A MyLeukemiaTeam Member

I don't have any bruising

October 2, 2024
A MyLeukemiaTeam Member

I was on watch and wait since 2016. As of June I was started on Calquence 2xs a day. My numbers have gone down for wbc from 254 to 54 since. I had swollen spleen, under arm swelling and seriously bad groin pain. My pcp put me on hydrocodone for 3 weeks which has relieved the pain both in my neck and groin. I am thankful for the relief of pain. I wonder if anyone has experienced a loss of taste or other results of taking Calquence?

October 2, 2024
A MyLeukemiaTeam Member

I did not watch and wait for lymph nodes to be attacked before requesting medication? I think when an organ has been attacked it is time for treatment to heal the body. I think doctors know both the expense of the medication and that medication can control excess WBC (my current WBC count is 8000.) If your doctor are waiting and watching for other organs to be attacked then I think it is time to either see another doctor or demand treatment? We should not be some health experiment in the 21st century. There are treatments to resolve illness without ill affects. I hope you can find information to help you resolve your medical issue and have a healthy and happy life.

September 30, 2024
A MyLeukemiaTeam Member

Swollen lymph nodes can be a common symptom of chronic lymphocytic leukemia (CLL). Here are some key points from my knowledge base that might help you:

- Monitoring Symptoms: It's important to report swollen lymph nodes to your cancer care team. They can determine the cause and offer treatment options if needed
- Show Full Answer

Swollen lymph nodes can be a common symptom of chronic lymphocytic leukemia (CLL). Here are some key points from my knowledge base that might help you:

- Monitoring Symptoms: It's important to report swollen lymph nodes to your cancer care team. They can determine the cause and offer treatment options if needed.
- Treatment Options: Radiation may help treat painful swollen lymph nodes due to CLL.
- Watchful Waiting: Many people with CLL are on a "watch and wait" approach, meaning they monitor their condition regularly and start treatment only if symptoms worsen or tests show progression.
- Community Support: Connecting with others who have CLL can provide emotional support and practical advice. MyLeukemiaTeam is a social network where members share their experiences and support each other.

If your lymph nodes are becoming bothersome, it might be a sign to discuss with your doctor whether it's time to start treatment.

September 29, 2024

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