When my husband started his Cll treatment after his diagnosis in feb 2024 he was in contact with the specialty pharmacy who applied for the grant from the Leukemia Lymphoma Society, they gave him a $4600 Grant that paid for his meds. It helped out so much. It didn't take long to hear back from them. And because of that help we decided to participate and fundraise for LLS's Light the Night Walk that we just attended last night. We were able to raise even more than the amount we received and there were thousands of us last night, and the fundraising is happening all over the country all year. I know it's hard to wait but know that the people of LLS are going to work hard to help you, you are not in this alone.

January 2024, I started taking Calquence 100 mg tablets twice a day. My research scared the #### out of me. I have Medicare Part D and the medication is on the approved list as a Tier 5 and in NC my copay would be 25%. In 2024 the monthly cost is $33,000 and my copay would be $3,300. I am truly blessed to being a patient at UNC Cancer Hospital. They have a team who works to get patient assistance. The hospital got me a grant for the year and my copay is zero. I did not have to do anything. I do not know what to expect for 2025. My next visit to hematology is in December.

My medication had been negotiated at $15500 per month with a co-pay of $3400. The Leukemia Society gave a grant of $4500 to cover the co-pay. Then during the third month my insurance covered 100%. I am glad my medical people applied for the grant to cover the co-pay and my insurance managed to cover 100%. I think if more people took the medication the cost would go down? I think all specialty medication may be high cost with no price controls. I am glad there are no ill affects from the medication.

Hello DebraBrass2, Thank you for your post on 2024 costs. It is funny because I was just getting on-line to see if anyone knew about "Treatment Costs". I'm still overwhelmed at the costs and treatments. I was told that I had CLL Jan2004 and am just beginning symptoms . A friend told me my oncologist will call a specialty pharmacy and help get a grant from the Leukemia Society. It's the "wait and see" that bothers me about the acceptance. I am going to ask her on my next office visit because I can't pay that kind of money.

COST OF MEDS
Gosh Every one,
I feel for you for If I was in the USA I would not be able to afford any medical treatment. Here in the UK, as you may know, we have the NHS and all our treatment is free at source.
Despite our treatment being free I still researched the cost of my chemo for a year which was over £4000 not including including the cost of my other meds . I was alarmed at the mark-up price pharmacies charge. A nurse practitioner who is my friend says that Pharmacies don't want to find a full "cure for cancer" so that can carry on making huge profits. I feel it is time that Pharmacies should be under control of Governments. Good luck every one. xx