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Have CLL And I'm On A Wait And Watch. My Arms Itch So Bad At Night That I Wake Up Scratching And Sometimes Bleeding. Is This Part Of CLL?

A MyLeukemiaTeam Member asked a question 💭
Atlanta, GA

I'm 68 and on wait and watch for 7 years now. Live in a suburb of Atlanta.

December 2, 2024
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A MyLeukemiaTeam Member

Tami, I also have CLL and am on watch and wait. Since diagnosis, I've noticed that my scalp has gotten more and more itchy and my skin is like sandpaper. Prescription shampoos and all other things I've tried for psoriasis have not helped at all, and even the best moisturizers don't help my skin. I also have developed chronic dry eye and no remedies have helped with that. It finally occurred to me (duh) that it could be the CLL. After reading more about it, I decided to order a humidifier, which is advised especially for dry eye. It will arrive tomorrow and I will let you know after a few weeks if it is making any difference.

December 2, 2024
A MyLeukemiaTeam Member

HI Tami:) Have you seen a dermatologist for the itching? Sometimes, its something very simple that it may be related to...change in soap, very dry air in house, change in lotion, other allergens in the house, etc.

December 3, 2024
A MyLeukemiaTeam Member

I had read that white blood cells can collect in the skin and affect "the largest organ" in the human body? The issues which occur with white blood cells gone wild is real? Last spring I had itchy arms at night? I do not know if it was a weather thing or me? I have not been affected by inch skin except for two months? I am lucky I did not catch my skin since I thought it might be an CLL caused issue? The good news is that my CLL medication has prevented any repeat itching.

December 2, 2024
A MyLeukemiaTeam Member

Thank you so much!

December 2, 2024
A MyLeukemiaTeam Member

Itching can be a symptom associated with chronic lymphocytic leukemia (CLL). It's important to monitor any new or worsening symptoms and discuss them with your doctor. Here are some steps you can take:

- Monitor Symptoms: Keep track of when the itching occurs and its severity
- Communicate with Your Doctor: Bring up the Show Full Answer

Itching can be a symptom associated with chronic lymphocytic leukemia (CLL). It's important to monitor any new or worsening symptoms and discuss them with your doctor. Here are some steps you can take:

- Monitor Symptoms: Keep track of when the itching occurs and its severity.
- Communicate with Your Doctor: Bring up the itching during your next visit, even if you're unsure if it's related to CLL.
- Regular Check-ups: Continue with regular blood tests and doctor visits to monitor your condition.

If the itching is severe or causing significant discomfort, your doctor may suggest treatments or interventions to help manage it.

December 2, 2024

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