Connect with others who understand.

Sign up Log in
Resources
About MyLeukemiaTeam
Powered By
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Been Diagnosed With CMML (Chronic Myelomonocytic Leukemia)?

A MyLeukemiaTeam Member asked a question 💭
Lakeland, Florida, USA

I would like to know what symptoms you are experiencing and what, if any, treatment you are undergoing.

August 21, 2019
•
View reactions
A MyLeukemiaTeam Member

I was diagnosed with CMML early last year (Not to be confused with cmL). High monocytes and anemic. It was recommended by 2 opinions to just watch it for now, it could be years before it got serious. My hematologist left the practice and I took the oportunity to get referral to Smilow at Yale. My new hematologist took my case before a dozen of his peers. they recommended stem cell transplant. I scheduled but ran into glitches so my pretreatment involved 2 rounds of chemo which brought me into remission. A month of rest later, i jumped into the stem cell program. That was February. I got a biopsy result last week - they saw no evidence of cancer cells and also said my graft was at about 97%.

March 26, 2023
A MyLeukemiaTeam Member

D.D. Try to find a grant that will help you pay for some of your expenses. I have a LLS grant that provides up to 10k worth of expense relief. It's been a life saver and I haven't had to sell any of my Cats or children for medical experiments. JK😉

June 29, 2023
A MyLeukemiaTeam Member

I have been diagnosed with CMML. Currently not receiving treatment - just "watchful waiting". It's like being put on hold without the Musak. Fortunately, I am in the UK. So if/when treatment starts, it will be free. One thing less to worry about.

October 28, 2023
A MyLeukemiaTeam Member

Chronic Myelomonocytic luekemia.

April 19, 2023
A MyLeukemiaTeam Member

Debbrady6 update: now I have no blasts and no symptoms.

My back, which may or may not be related, causes some sciatic pain.

This is year two. I go monthly for osteoporosis shots (I supposedly don’t have it) and blood tests.
I hope against hope to be in the same place from now on!

It’s the closest to remission I will ever have since I’m too old for a bone marrow transplant.

October 29, 2023

Related content

View All

Is CMML The Same As CML ?

A MyLeukemiaTeam Member asked a question 💭
Chester, UK

Can I Get Information On CMML?

A MyLeukemiaTeam Member asked a question 💭
Owosso, MI

Is Targeting Therapy To Help Treat Cmml

A MyLeukemiaTeam Member asked a question 💭
Florida, NY
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in