Anyone Been Diagnosed With CMML (Chronic Myelomonocytic Leukemia)?
I would like to know what symptoms you are experiencing and what, if any, treatment you are undergoing.
I was diagnosed with CMML early last year (Not to be confused with cmL). High monocytes and anemic. It was recommended by 2 opinions to just watch it for now, it could be years before it got serious. My hematologist left the practice and I took the oportunity to get referral to Smilow at Yale. My new hematologist took my case before a dozen of his peers. they recommended stem cell transplant. I scheduled but ran into glitches so my pretreatment involved 2 rounds of chemo which brought me into remission. A month of rest later, i jumped into the stem cell program. That was February. I got a biopsy result last week - they saw no evidence of cancer cells and also said my graft was at about 97%.
D.D. Try to find a grant that will help you pay for some of your expenses. I have a LLS grant that provides up to 10k worth of expense relief. It's been a life saver and I haven't had to sell any of my Cats or children for medical experiments. JK😉
I have been diagnosed with CMML. Currently not receiving treatment - just "watchful waiting". It's like being put on hold without the Musak. Fortunately, I am in the UK. So if/when treatment starts, it will be free. One thing less to worry about.
Chronic Myelomonocytic luekemia.
Debbrady6 update: now I have no blasts and no symptoms.
My back, which may or may not be related, causes some sciatic pain.
This is year two. I go monthly for osteoporosis shots (I supposedly don’t have it) and blood tests.
I hope against hope to be in the same place from now on!
It’s the closest to remission I will ever have since I’m too old for a bone marrow transplant.
Is CMML The Same As CML ?
Can I Get Information On CMML?
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