I've had the intravenous treatment and I'm on oral treatment, (Calquence) to maintain favorable blood labs. The I've treatment was to kick the CLL in the butt, cause I had critical blood labs when I wound up in the hospital. Then I was put on the Calquence as a more gentler treatment. I've noticed that everyone reacts differently to CLL, and has various treatments and reactions. I had a really good doctor that discussed most all the information in my blood results. Iron, Vitamin D, liver and kidney fuctions..... there is a wealth of information the doctors can look at from that little tube of blood. But your doctor will fine tune you're treatment as he/she tracks your progress or lack of. Start Googling for information about CLL fatigue, what medications the doctor might have you take. Calquence has some side effects simular to CLL itself... and then some. CLL muscle or bone ache and why to drink water, a lot. Google is a wealth of info. Five years I didn't know much about CLL, now I'm an expert. Good luck... and be a healthy patient.

Don't let your oncologist make light of your symptoms, and saying it's 'old age' is disgraceful. I've dealt with aches and pain most of my life before CLL... there is a difference. And maybe some tough love here. Yes, dwelling on it really doesn't help much, staying educated and knowledgeable about your case does help. Maybe I have a 'recovering addict' mentality... "One day at a time", and the 'Serenity Prayer' are both good philosophy that works with CLL just as well.
When it was time to start treatment, I was ready to sign off... I'm glad the oncologist talked me into doing treatment.
Ya, your doctors saying it's "old age", that has me upset. I was on watch and wait back in 2012when I was diagnosed, started treatments 2022 and finished 2023, but stillntake oral treatment. And now back on watch and wait. I still ache, wake up worn out, and developed some motorskill problems and struggle with some cognitive issues. And it's not from age !! Sorry I'm upset about this... guess I better go have some ice cream. Then lay down for my afternoon nap. I never took naps before my CLL reached Stage 4 and I still do even though I'm in 'remission' Old age my ...

I am glad I read this....the pst few days I have been achy and last night I could hardly sleep as it seemed every bone and muscle in my body was aching. I got up feeling all wiped out. Now the ache has settled into my hips and legs. I am on watch and wait and want to stay here for awhile buy is this achiness all part of it? I also have to take a nap every afternoon.....I dont see the oncologist until April but when i said I hurt the last time I saw him he shrugged it off as old age...I am 76.,.,.,,does anyone else on watch and wait have these things?

Michael142 - PREACH. excellent input. Agree - as the patient you are in the driver's seat. If you're not feeling the jibe - move to someone who does. My last try with Calquence made me so achy - especially at night - had to take hot baths every night. I finally gave up when my thinking got so foggy and I started to lose my memory. It says that can be permanent. That was the final straw.

I have lots of aches, sometimes fatigue, depressed at times and wonder if it's just cuz I am so aware, or age is a factor??