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Is There Anyone On Iclusig (ponatinib)? I Have CML & B+ ALL (it's A Weird Diagnosis As My Leukemia Has Components Of Both).

A MyLeukemiaTeam Member asked a question 💭
West Islip, NY
October 6, 2024
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A MyLeukemiaTeam Member

They were going to put me on Ponatinib. I took all of the tests which were a little scary, blood pressure reading in my legs from top to bottom and my arms to see if I had any potential for clots etc. I really wanted to avoid it and they ended up putting me on Scemblix since last year. I have had it CML for five years and spent 3.5 on Sprycel which flatlined at .11% BCR and then was on Bosulif for a few months and could not handle the side effects. My thoughts are with you and hope you get fantastic results!!!!

October 18, 2024
A MyLeukemiaTeam Member

Thank you. I'm looking for someone on this site that takes it to talk about this treatment and how they are doing on this med.

October 6, 2024
A MyLeukemiaTeam Member

Yes, there are people on Iclusig (ponatinib). According to my knowledge base, 24 people have indicated they have taken Iclusig. It is used to treat adults with chronic myelogenous leukemia (CML) in any phase that is positive for the Philadelphia chromosome (Ph+), as well as adult cases of both CML and Ph+ acute Show Full Answer

Yes, there are people on Iclusig (ponatinib). According to my knowledge base, 24 people have indicated they have taken Iclusig. It is used to treat adults with chronic myelogenous leukemia (CML) in any phase that is positive for the Philadelphia chromosome (Ph+), as well as adult cases of both CML and Ph+ acute lymphoblastic leukemia (ALL) that test positive for the T315I mutation.

October 6, 2024

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