I'm Interested In Hearing About Other's Experiences With Scemblix. My Doctor Is Changing My Imatinib To It. My 4th Medication For CML
After serious side effects on 4 TKI's in 3 years My Oncologist wants me to try Scemblix. I am hesitant due to the other side effects. They are also trying to get me approved for financial assistance to cover the cost. If I can't get financial assistance I have decided to just put my health in God's hands.
Joseph, thank you so much for your answer, it is encouraging. It sounds, like me, you are prone to the side-effects. I spent about 45 minutes on the phone with the Scemblix manufacturer's representative discussing the side-effects and financial aid. I also have Kidney disease which the other TKIs effected in a negative way. She assured me that Scemblix is not as harmful to the kidneys but I will have to watch my blood pressure. Thank you again and I hope the medicine continues to work well for you.
Susan, please don't give up on the TKIs! I have been on Scemblix for a year and 2 months and had the least amount of side effects on this medication. I was on Dasatinib/Sprycel for 3 years and Bosulif/Bosutinib for 3 months. Not many side effects on Sprycel except for fatigue and joint pain. It stopped being effective. Bosulif was brutal with gastro issues and I could not tolerate it. I have even less side effects on Scemblix than Sprycel so I encourage you to give it a try! All the best and prayers to you Susan!
How Many TKIs Are Their Available To Fight CML
Can CML Be Cured? Completely?
Does Anybody Have The Data On Scemblix ? I Am Wondering How Long It Remains Effective.