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I'm Interested In Hearing About Other's Experiences With Scemblix. My Doctor Is Changing My Imatinib To It. My 4th Medication For CML

A MyLeukemiaTeam Member asked a question 💭

After serious side effects on 4 TKI's in 3 years My Oncologist wants me to try Scemblix. I am hesitant due to the other side effects. They are also trying to get me approved for financial assistance to cover the cost. If I can't get financial assistance I have decided to just put my health in God's hands.

5 days ago
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A MyLeukemiaTeam Member

Joseph, thank you so much for your answer, it is encouraging. It sounds, like me, you are prone to the side-effects. I spent about 45 minutes on the phone with the Scemblix manufacturer's representative discussing the side-effects and financial aid. I also have Kidney disease which the other TKIs effected in a negative way. She assured me that Scemblix is not as harmful to the kidneys but I will have to watch my blood pressure. Thank you again and I hope the medicine continues to work well for you.

3 days ago
A MyLeukemiaTeam Member

Susan, please don't give up on the TKIs! I have been on Scemblix for a year and 2 months and had the least amount of side effects on this medication. I was on Dasatinib/Sprycel for 3 years and Bosulif/Bosutinib for 3 months. Not many side effects on Sprycel except for fatigue and joint pain. It stopped being effective. Bosulif was brutal with gastro issues and I could not tolerate it. I have even less side effects on Scemblix than Sprycel so I encourage you to give it a try! All the best and prayers to you Susan!

3 days ago

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